Home at last! Our stay in Hong Kong was restorative in every sense --- family, food and rest. Delectable food, feather-soft beds, showers so bracing that the water literally excoriates dirt off the skin and coddling from Mom made up for a month's worth of boot camp. Oh, did I mention shopping? However, there's no place like home. We missed the clear blue skies, the mild dry weather and the refreshing clean air. Our lungs thank us!
Today is devoted to sorting through a month's worth of mail and recent emails, shopping for groceries, unpacking, doing laundry and battling jet lag. This left no time for Richard to resume his rehab. He has used the exercise center at the hotel in Hong Kong once or twice but it paled in comparison to the twice daily PT & OT regime at Nanshan. Our goal is to have him ramp back up to an hour of exercise per day. Aside from the recumbent bicycle, workouts at the Y and weekly Pilates, we plan on purchasing a treadmill and using it as per the recommendations of Big Dr. Lee. Also, I'll be looking for pegboards and the nut and screw board that Dr. Ye used on Richard during OT. These are possibly available at teaching supplies store. Acupuncture and throat collar will be impossible to replicate here. Although our friends Jeanne and Cathy have recommended a good local acupuncturist that we may try out in the future.
We will try to post updates on this blog to avoid the dreaded silence that so often occurs when the patient returns home after the stem cell treatment. Richard is slated for a visit with Dr. Perlman at UCLA at the beginning of May. We will be certain to post her comments and any findings of the visit.
*Speaking of posts, the photos of the "So long and thanks for all the fish" post are up again and this time they are captioned.
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3 comments:
So happy to read your update from home this morning ! Plse keep your fellow MJD affected readers posted on your recovery path! You are in my prayers.
lk, Ontario
Awaiting your "Ten things" list should you re-visit!
I am planning for treatment this fall, and am also an ethic Chinese ataxian.
Thank you for your open and generous sharing spirit !
I'll be revisiting the "Top ten List"; that was a good idea!
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