A Spoonful of Sugar

We just returned from a visit with Dr. Perlman last Friday at UCLA. Richard's SARA score stayed pretty much the same which is encouraging.

Dr. Perlman wanted Richard to start taking a new supplement called Trehalose which is a sugar derivative. Trehalose has been shown to help with Huntington's Disease in preventing the clumping of proteins in the cells. One of the hallmarks of MJD is also clumping of the proteins so Trehalose should theoretically help stop this. Moreover, Trehalose is fairly safe with few side effects and is very cost-effective and readily available.

Here's a link to the website of Neurocoat which is a 100% Trehalose supplement. This article has details on the recommended dosage. We have already placed our order.