Tuesday, February 24, 2009

Call To Arms

I often wonder about the readership of this blog and if there are any readers at all. To those who peruse regularly and even to those who stumble upon this site by accident, I would like to call your attention to two important events concerning MJD.

Firstly, the National Ataxia Foundation 52nd Annual Membership Meeting will be held next month in Seattle from March 20th to March 22nd. Richard and I attended last year's meeting in Las Vegas and came away learning so much. Needless to say, Richard will not be missing this for the world! It is not too late to register. You can even do that online!

Secondly, we just received Dr. S. H. Subramony's questionnaires in the mail today. Dr. Subramony of University of Texas, who is a renown expert of SCA diseases, is currently conducting a study on MJDers. Those who have registered with the Cooperative Ataxia Registry should have been contacted already to participate in this study. If that is not the case and/or if you would like to find out if Dr. Subramony is still enrolling for this study, please contact him at:

S H Subramony MD
Professor of Neurology

University of Texas Medical Branch

301 University Blvd
Galveston TX 77555
Office 409 772 2646
Fax 409 772 6940
E-mail: shsubram@utmb.edu